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Associated and/or Symptomatically Similar Conditions

The differentiation between "associated" and "symptomatically similar" as used in this directory section is not a precise one. "Associated Conditions" are known to present in Polio Survivors and can be additional to symptoms that may be diagnosed as Post-Polio Syndrome. "Symptomatically Similar Conditions" are those that present similar symptoms to Polio or Post-Polio conditions but may still present in Polio Survivors. "Non-Specific Neurological Conditions" resources may cover conditions from both the previous categories.

Associated and/or Symptomatically Similar Conditions Index

Associated Conditions
Dysphagia | Fibromylagia | Neuropathies | Respiratory Conditions (includes Ventilation Assistance)
Sleep Disorders

Symptomatically Similar Conditions
Arachnoiditis | CFS/CFIDS/CMPS/FM/ME | Guillain-Barré Syndrome (GBS)
Spinal Muscular Atrophy (SMA) | Thyroid Conditions

Non-Specific Neurological Conditions

[ Directory Index ]

Associated Conditions

Dysphagia | Fibromylagia | Neuropathies | Respiratory Conditions (includes Ventilation Assistance)
Sleep Disorders

Dysphagia

Dysphagia Resource Center
http://www.dysphagia.com/
Sections covering Anatomy and Physiology, Dysphagia Mail List Archive, Case Studies, Conference Announcements, Diseases and Dysphagia, Internet Journals, Reference Lists, Book Lists, & Book Reviews, Organizations & Foundations, Other Lists, CEU Sites & Interesting Sites, Research Information & Funding and Tutorials and Articles.

[ Index ]

 Dysphagia

[ Index ]

Fibromylagia
See also CFS/CFIDS/CMPS/FM/ME

Fibro World
http://members.aol.com/fibroworld/index.htm
Information on Fibromylagia and Myofascial Pain Syndrome.

[ Index ]

UK-FMS
http://www.lewolf.com/fms.htm [UK]
! Site no longer available. !
Home of a new UK-based discussion mailing list for all matters relating to Fibromylagia.

[ Index ]

 Fibromylagia

[ Index ]

Neuropathies

Neuropathy Association
http://www.neuropathy.org/
"The Neuropathy Association is a public, nonprofit organization which was established by people with neuropathy and their families or friends to help those who suffer from disorders that affect the peripheral nerves."

The Member Services section covers Neuropathy Clinical Centers, Neuropathy Bulletin Board, Feature Articles, Meetings and Announcements, Research Developments, Clinical Studies and Trials, Advocacy, Fundraising and Explaining Neuropathy.

[ Index ]

Respiratory Conditions

The RT Corner
http://www.rtcorner.com/Main/rtcorner.htm
! Site no longer available. !
"The RT Corner is an interactive web site devoted entirely to the Respiratory Therapy Student and Respiratory Therapy Education." Includes a useful catalogue of links to a range of articles covering various aspects of respiratory conditions.

[ Index ]

BREETHEZY™
http://www.breethezy.com/
"This website is designed for ventilator users, their families and caregivers, and the health care professionals who interact with them. We also welcome all others who are interested in respiratory, as well as health issues in general, and believe that the information, support and tools discussed here can be applied to many life situations."

[ Index ]

Sleep Disorders

The National Center on Sleep Disorders Research (NCSDR)
http://www.nhlbi.nih.gov/about/ncsdr/index.htm
USA
The National Center on Sleep Disorders Research (NCSDR), located within the National Heart, Lung, and Blood Institute (NHLBI) of the National Institutes of Health (NIH), was established in 1993 to combat a serious public health concern. This site covers a range of sleep disorders including sleep apnea and has downloadable information leaflets in both text and Adobe Acrobat PDF format.

[ Index ]

The American Sleep Disorders Association (ASDA)
http://www.asda.org/
! Site no longer available. !
In the PATIENT/PUBLIC AREA you will find brief information on sleep disorders including sleep apnea.

[ Index ]

The Restless Leg Syndrome (RLS) Foundation.
http://www.rls.org/
USA
Information about RLS can be found in both Patient Information and Medical Bulletin sections.

[ Index ]

Symptomatically Similar Conditions

Arachnoiditis | CFS/CFIDS/CMPS/FM/ME | Guillain-Barré Syndrome (GBS)
Spinal Muscular Atrophy (SMA) | Thyroid Conditions

Arachnoiditis

Dr. Sarah Smith Explains Arachnoiditis
http://homepages.nildram.co.uk/~backtalk/arach.htm [UK]
! Site no longer available. !
Arachnoiditis is a chronic inflammation of the arachnoid layer of the meninges, which are the coverings of the brain and spinal cord. The most severe form is Adhesive arachnoiditis, which may be progressive.

The scarring produced by the disease causes many symptoms, the most debilitating of which is pain, typically constant and of a burning nature, sometimes with intermittent sharp, stabbing pains (sometimes described as electric shock sensation). The pain is principally in the lower back and limbs, although it may be found higher up the spine and radiate down the arms. Other sensory symptoms include: Tingling or numbness; Heightened skin sensation; Normally painless stimuli may be painful; Strange sensations e.g. water running down leg; Burning in ankles or feet; sensation like walking on broken glass. Movement (motor) functions may also be affected. Symptoms include: Weakness (rarely paralysis), Muscle spasms, Muscle cramps.

The articles on Arachnoiditis are hosted on the site of the National Back Pain Association Havering Branch, a back pain support group in the U.K.

[ Index ]

CFS/CFIDS/CMPS/FM/ME

Note: Information sources on the above conditions appear to group them together in various combinations.

Jane Colby's CFS/ME Information Site
http://www.jafc.demon.co.uk/
[UK]
Jane Colby is on the UK National M.E. Task Force, gives lectures and media interviews and regularly advises UK CFIDS charities. In April 1996 she and TV personality Esther Rantzen launched their M.E. Children's Charter for the UK Organisation Action for M.E. Her Children's Charter and other information about CFIDS/M.E. can be found at this site. See also the review of her book ME - The New Plague.

[ Index ]

Melissa Kaplan's Chronic Neuroimmune Diseases [originally CFS/CFIDS/FM/ME Information Site]
http://anapsid.org/cnd/

was http://www.sonic.net/melissk/cfsinfo.html
was http://www.sonic.net/~melissk/cfs_main.html
CFS/CFIDS introduction plus many articles and links. Post-Polio covered.

[ Index ]

 Chronic Fatigue Syndrome

[ Index ]

Guillain-Barré Syndrome (GBS)

Guillain-Barré Syndrome Support Group of the United Kingdom
http://www.gbs.org.uk/
[UK]
Registered Charity No. 327314
Comprehensive site covering many aspects of the syndrome. Sections include Need advice? How the Group Can Help You, Basic Questions about GBS and CIDP, Overview of Neuropathy, More About GBS and CDIP, The History of GBS, Alternative, Obscure and Obsolete Terms for GBS etc., Reaching Out, the Group's Journal, Information for Health Professionals, Information for Sufferers of Peripheral Nueropathy, Transverse Myelitis and the Churg-Strauss Syndrome, About the GBS Support Group, Conference Report 1997, How to Join the GBS Support Group, How to Make a Contribution, Links to the World Wide Web, Members' Home Pages and What's New?.

[ Index ]

 Guillain-Barré Syndrome

[ Index ]

Spinal Muscular Atrophy (SMA)

Families of Spinal Muscular Atrophy
http://www.abacus96.com/fsma/home.htm
! Site no longer available. !
Living with SMA: Information and Resources.

[ Index ]

 Spinal Muscular Atrophy
! Site no longer available. !

[ Index ]

Thyroid Conditions

Guide to Thyroid Conditions
http://thyroid.about.com/

was http://thyroid.miningco.com/
Thyroid conditions of one form or another are quite common and often go undiagnosed. At least one of the symptoms, i.e. fatigue, may mimic or exacerbate fatigue associated with Post-Polio Conditions. This particular resource is often referenced on thyroid mailing lists and as a good place to learn more about thyroid conditions.

See also Dr. Henry writes about the thyroid gland in the Lincolnshire Post-Polio Library

[ Index ]

Non-Specific Neurological Conditions


Glaxo Neurological Centre
http://glaxocentre.merseyside.org/ [UK]
! Site no longer available. !
Supports people with Neurological Conditions and their Families.

[ Index ]

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The Lincolnshire Post-Polio Network
Registered Charity No. 1064177
An Information Service for Polio Survivors and Medical Professionals

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The inclusion of a resource in this directory does not necessarily constitute endorsement or approval by the Lincolnshire Post-Polio Network.


© Copyright The Lincolnshire Post-Polio Network 1997 - 2009.

Document preparation: Chris Salter, Original Think-tank, Cornwall, United Kingdom.
Last modification: 27th April 2009.
Last information content change: 27th April 2009.

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