Welcome to the Polio Survivors Network

What we have - What we are - What we do

Polio is now almost forgotten due to an effective vaccine that was developed in the fifties. Until then an average summer polio outbreak would result in 5000-7000 cases.

After the vaccine people sighed with relief and got on with their lives. Many polio survivors also tried to leave the past behind and got on with their lives, determined to live a normal life, have careers and families. Polio Survivors who struggled to overcome problems are now being hit by Post Polio Syndrome in their later years. Post Polio Syndrome describes the deterioration of muscles and nerves that have struggled to cope through a life time of strain to overcome and compensate for the debilitating effects of polio.

It is estimated there are 120,000 polio survivors in the UK and many, having survived

Polio Survivors Network Members Survey

Original Questionnaire was sent to members on 22nd November 2010. [Original PDF file here].

The responses were collated, the report written and published October 2011. [PDF file here]

This Survey is being distributed as widely around the country as it is possible for us and already we have had some very positive responses in particular from researchers who wish to work with us.

By distributing the data that has arisen in the survey we hope to stimulate discussions and research in to some of the issues that the polio survivors are coping with on a daily basis.

If you know of any person who you think would be interested in our survey perhaps you could either pass it on or provide an email address for electronic delivery or name /address so we can post a copy.

We are always interested as to who has had a copy to update our list so if we could be kept informed it would be useful.

We would be interested in hearing any comments you may have. (See the "Contact us" box on this page for our details)

PSN Trustees.

We're Still Here Campaign 2011 Logo

Our Newsletters section

We periodically publish a newsletter informing all of the developments in the field of Post Polio syndrome. This publication has recently been renaned Post Polio Matters and copies will soon be appearing on this WEB site.

Copies of the older LincPIN newsletters can be found by clicking on the picture below: